Patient and self-help organisations play a central role in supporting patients and their families. Among other things, they provide information about clinical pictures, treatment options and everyday life with diseases. An important principle here is help from those affected for those affected. In addition, they promote exchange among those affected, are involved in representing their interests and contribute to the further development of care and research.
This map specifically lists patient and self-help organisations, self-help groups and patient advisory boards that are active in the context of gene and cell-based therapies.
Are you active in a patient or self-help organization, a support group or a patient advisory board and would like to be listed in the GCT Atlas? Then we look forward to receiving your information.